Web Blog

We would like to remind you of this upcoming event.
Marc's birthday!
Date: Friday, June 25, 2004
Time: All Day
Marc's birthday. His email addy is MLuehmann@...

Dear MoveOn Member,
Congress will cast two critical votes tomorrow, Thursday June 24th,
that will determine whether we'll continue President Bush's policy of
giving tax cuts to people who don't need them instead of investing in
education, health care, and first responders.
Your Representative, James T. Walsh, is a key swing vote on these bills.
One bill, sponsored by House Republican leaders including Jim Nussle
(R-IA), would reshape the Congressional budget rules, forcing deep,
permanent cuts in funding for veterans, kids, the elderly, education
and the environment while making it easier to pass more irresponsible
tax cuts. In contrast, the second bill, sponsored by Representative
David Obey (D-WI), would reduce tax breaks for people earning over $1
million per year, and would increase spending on homeland security,
veterans, education, healthcare, and the environment.
These are two of the most important votes that Congress will make this
year. Please call now:
Representative James T. Walsh
Phone: 202-225-3701
Be sure the staff members know you're a constituent, then urge your
Representative to:
"Vote NO on the Nussle budget rules bill (H.R. 3973)."
- and -
"Vote Yes on the Obey budget resolution (House Resolution 685)"

Give them some reasons why these budget votes matter to you. Some
ideas are below.

Please let us know you're calling, at:
http://www.moveon.org/callmade8.html?id=2979-1500100-G.w1r4qpOhjiJvSC4R1jBQ
The Federal budget isn't very exciting. And that's what conservative
Republicans in the House of Representatives are banking on -- that
people won't be paying attention to these votes.
The budget rules bill is an attempt to lock in President Bush's
"compassionate conservative" vision of government for years to come.
Unfortunately, President Bush's definition of "compassionate
conservative" means cutting funding that helps millions of Americans
with health care, education and retirement security.
Representative Obey's resolution offers a different choice -- we can
invest in the most important national priorities instead of offering
new tax breaks to millionaires. Obey's resolution would reduce the
deficit while increasing our investments in homeland security,
veterans' benefits, education, health care and the environment.
In contrast, the Nussle budget rules bill would have a devastating
impact on many groups, including children and families. The billions
of dollars in budget cuts would mean that, for each year on average over
the next ten years:
- 280,000 families lose child care assistance;
- Nearly all of the 24 million children covered by Medicaid could lose
coverage;
- Families of 115,000 children lose foster care and adoption
assistance payments;
- Nearly 1.5 million children lose basic nutrition through food
stamps; and
- 3.9 million children lose free school lunches;

The Nussle budget rules bill will have equally damaging effects on
veterans' benefits, Medicare, and environmental protection efforts.
When it comes to the future of government spending, the Republican plan
pits the wealthiest Americans against the rest of us, while tilting the
scales in their favor. Most of the federal benefits that low- or
moderate-income families receive come from spending programs like
Medicare, Medicaid, veterans programs, and student loans. In contrast,
most of the government subsidies that go to high-income individuals and
corporations usually come from tax cuts. The Nussle bill makes it
nearly impossible to expand government programs but doesn't restrict
the expansion of tax cuts.
The Nussle budget rules bill is being offered in the name of "deficit
control". And thanks to President Bush's irresponsible tax cuts,
America is now facing the largest deficits in our history. But this
bill doesn't fix the problem - instead of addressing the causes of the
deficit, it paves the way to make it worse, while at the same time
stacking the deck in favor of the wealthiest individuals and
corporations.
The Obey resolution offers us a better pathway forward -- Americans can
work together to make the needed investments in our future.
Please call your Representative about both of these important bills
today.
Thank you.
Sincerely,
--Carrie, Joan, Lee, Noah, Peter, and Wes
The MoveOn.org Team
June 23rd, 2004

Hi Self Advocacy Advisors-
I am trying something new and sending out email messages with some info that I think some groups might be interested in. Feel free to pass it on to your President or Executive committee, and also share with self advocates you feel would be interested.
This is from an on-line newsletter from the Minneapolis Statewide SA organization- A.C.T. They are the group that produces the âFreedom, Justice, and Equalityâ, âMy Choice, Your Decisionâ and several other popular videos which you might have seen. (If you havenât and you want to, you can borrow them from the WNY Self Advocacy office. We are in process putting our resource center together.) If interested, you can subscribe to their newsletter by the links below.
Let me know if you feel this is a good way to get information to you and the groups you advise. I will do my best to send only things that are important or seem like they may be of interest.
Keep your head high and remember the good in what you are doing,
Yours in self advocacy,
Sophia
------ Forwarded Message
From: "Advocating Change Together" <act@...
Date: Wed, 23 Jun 2004 11:38:33 -0500
To: <sophiar@...
Subject: ACT Memo: Want to Help Write a Video?
<http://cl.extm.us/?fe8c13767264027b76-fe26127177600675711278

As you requested, this is your ACT Self-Advocacy Resource Network memo facilitating a national dialogue among self-advocates and supporters and a clearinghouse for materials and training that support self-advocacy. View this e-mail as a Web page <http://cl.extm.us/?fe8b13767264027b71-fe26127177600675711278

Want to Help Write a Video?

Attention self-advocates:

Weâd like your help on a fun and important project. St. Paul-based Advocating Change Together is producing a short motivational video (3-5 minutes) on the values and beliefs of self-advocates⦠in their own words. If youâd like your own words or ideas included as part of this video, please consider the following question: What words or phrases come to mind
when you think of self-advocacy? Perhaps you could discuss this question as a group at your next meeting and send SARN a note with your ideas. Weâll try to include as many of your ideas as we can in putting together this video.

The National Research Council (NRC) to Review Toxicologic Risk of Fluoride in Drinking Water

About NRC Committee: Toxicologic Risk of Fluoride in Drinking Water

Committee Website

Committee Membership

Comments on Committee Membership

NRC Project Scope:

"A subcommittee of the National Research Council's (NRC) Committee on Toxicology (COT) will review toxicologic, epidemiologic, and clinical data published since 1993, and exposure data on orally ingested fluoride from drinking water and other sources (e.g., food, toothpaste, dental rinses). Based on those reviews the subcommittee will evaluate independently the scientific and technical basis of the U.S. Environmental Agency's (EPA) maximum contaminant level (MCL) of 4 milligram per liter (mg/L) and secondary maximum contaminant level (SMCL) of 2 mg/L in drinking water. The subcommittee will advise EPA on the adequacy of its fluoride MCL and SMCL to protect children and others from adverse effects. The subcommittee will determine the relative contribution of various fluoride sources (e.g., food, dental-hygiene products) to total exposure. The subcommittee will also identify data gaps and make recommendations for future research relevant to setting the MCL and SMCL for
fluoride."

UPDATES:

Fluoride & Cancer: New Report + Background (pdf file) - Submission by Michael Connett, Editor FAN Science-Watch, May 27, 2004

Fluoride's adverse effects on the male reproductive system - Submission by Ellen Connett, Director, Fluoride Action Network Pesticide Project, May 3, 2004

Fluoride's effects on the brain - Submission by Ellen Connett, Director, Fluoride Action Network Pesticide Project, April 19, 2004

April 6th Letter to NRC - Paul Connett, Executive Director, Fluoride Action Network

Latest Submission to NRC Panel on Fluoride/Bone - Michael Connett, March 12 & 15, 2004

PUBLIC MEETING #2 (November 10, 2003)

Article Discussing 2nd Meeting:

The NRC's second

Tom, I am familiar with Dr. Hans Nieper. Please when you are preaching...please be sure and give all relevant information regarding the subject. There are many people that believed that Dr. Neiper helped them, and if they believe that, then he did. However, his ideas on Fluoride were merely his opinions and speculations. Being that his death occured over 6 years ago, his speculations of Fluoride are an outdated speculation.

Here is an article about Dr. Hans Nieper of Hanover Germany. He died 6 years ago. Note :

"Given Niepers propensity to substitute speculation for evidence, and intuition for rigor, it is hard to give much credence to his claims of remarkable cures and benefits"

..."Since Nieper did not perform controlled studies of his speculations or treatments, his clinical observations cannot be used to prove or disprove efficacy."...."Niepers work has been widely denounced, especially by the US gov't ..."

http://www.delano.com/Articles/About-Hans-Nieper.html

H20,

If you do not believe that Fluoride is poison, so be it. The fact of the matter is that it is poison. If you do not believe that Dr. Hans Neiper had extraordinary success treating ms, so be it. The fact of the matter is....he did. The documentation is there, if you look!! Talk about preaching!!

Regards,

Tom

Adapted from The Daily Motivator

Thursday, June 24, 2004

Be of value

When you are always worried about what you can get out of the deal, you won't get very much. When you focus on what you can give, a whole universe of positive possibilities will open up to you.

There is always work that needs to be done. There is always a way to make a positive contribution. There are countless ways to be of service and value. To be of value is the very best way to create value in your own life and in the world around you.

You don't need anyone else's permission to make a positive contribution to life. All you need to do is open your eyes.

Look around you with a genuine sense of caring for the needs of others. In every direction you will see countless opportunities for making a positive difference.

If you seek real confidence, richness and fulfillment then step up, take the initiative and be of real value. It will bring true, lasting and meaningful success.

-- Ralph Marston

[INLINE]
~Joyce [INLINE]
The only thing standing between you and your dream is your belief that it's possible and your willingness to go after it.

Dr. Hans Neiper of Hannover, Germany was the world's foremost and successful MD regarding MS until his death three years ago. He specifically stated that "Fluoride" was one of the worst "Poisons" in existence and should be totally and completely avoided.

Regards,

Tom

Jayne, I've been getting these same types of messages from folks who join my lists and then proceed to spam us. If you know of a way to keep this from happening, I'd sure like to know.
Irene

MBP8298: POTENTIAL HOPE FOR SPMS
Alberta Canada-based BioMS Medical Corp recently received a go-ahead from the Therapeutic Products Directorate of Health Canada to initiate its Phase III clinical trail of MBP8298 for the treatment of secondary-progressive MS (SPMS).
MBP8298 is a synthetic Myelin Basic Protein peptide (MBP) comprised of 17 amino acids.
Past clinical trails have shown that some MS patients experience clinical benefit when taking MBP8298. In the upcoming clinical trial, which will be a double blind, placebo-controlled trial with up to 553 patients at multiple sites, BioMS is targeting those with SPMS.
For more information on MBP8298, visit http://www.biomsmedical.com. Click on 'multiple sclerosis' on the toolbar at the top. Or, call toll-free 1-866-701-6033.

I was a dental hygenist for over 13 years. I have a college education on Flouride and Amalgam fillings. I attended over 100 hours of continuing education to learn about such things. I wish I could say that it was the Amalgam I was exposed to, or the flouride that caused my MS. That would answer alot of questions and be an easy fix to the world of MS. Unfortunatly, but fortunatly for all of us in the dental field who are exposed to mercury and amalgam on a daily basis, people who have a mouth full of fillings, eat alot of tuna, and drink regular water, or choose to use toothpaste.....neither Amalgam, or Flouride has been proven to cause health problems of any kind when used properly. The same goes for Root Canal Therapy which I have seen articles as well . We have learned that MS is an immune response, being probably genetic and environmental. I'm sure those lab mice with EAE (an animal model of MS) were tested with thousands of different agents.. I know that they wouldn't
have tried out amalgam, flouride and rootcanal filling on them while they were in there. After all, they do test out all commonly exposed agents. Those items did not show significant change in animal model EAE compared to placebo.I as well, don't see how this has any relation to MS. Many patients I have known to forbid flouride in their life have lost their teeth long term......If you start using flouride now, you might catch yours in time...

Minde'

-
Actually natural occuring Floride was also discovered in some milk
that was further concentrated into cheese.The folks that lived in
this area where the underground rock structure of limestone was the
parent layer for the soil contained also amounts of floride.The
minerals of the subsoil are slowly disolved into the water supply and
also hense to the milk the cows drink.
Now these persons living their life in these vacinities had very
small amounts of tooth decay. It was traced back to the water supply.
One such spot was in upstate NY.
But I realy don't see what this essay on floride has much business
on a MS web site.I have had by this time in my life all or nearly all
my original tooth fillings replaced with caps.but no stop of my MS
has taken place with the removal of fillings.and they were taken out
very carefully too.
Richard

ACTION ALERT:
HELP PROTECT THE MEDICAID PRESCRIPTION DRUG PROGRAM
ISSUE:
The New York State budget process is at a critical juncture. Cuts to the
Medicaid program are still on the table. Any budget cuts that make it more
difficult
to access prescription drugs will hurt people with disabilities.
BACKGROUND:
The Medicaid prescription drug program is a lifeline for people with
disabilities. Among working age adults, those with disabilities are more
likely to
have health care and prescription drug coverage than the rest of the
population. Working age adults with disabilities who have health care and
prescription
drug coverage are more likely to have coverage through a public government
funded plan such as Medicaid than the rest of the population.
We need to strongly oppose any cuts to Medicaid that will make it more
difficult for people with disabilities to access prescription drugs. Call
Assembly
Speaker Silver and Senate Majority Leader Bruno and tell them to protect
access to Medicaid prescription drug benefits!
Here is what will happen if we don't act today:
Medicaid pharmacy co-pays will increase from $2 to $3 for brand name drugs
and .50 to 1.00 for generics. People with disabilities can require as many
as
15 prescriptions per month. For someone living on a very limited income,
having to spend an extra $15 each month means having to choose between
essentials
such as food, transportation or much-needed medical supplies.
Consumers, doctors and pharmacists will have to navigate a burdensome and
complicated system called prior authorization in order to access many of
their
prescription drugs. Without any protections to ensure the consumer can
still access their medication if the system goes wrong, people will walk
away from
the pharmacy empty handed, putting their health at risk.
ACTION STEPS
Step # 1
On Monday, June 21 and Tuesday, June 22 call Speaker Silver at 518-455-3791
and Senator Bruno at 518-455-2800 and tell them:
"Prescription drug access is vital for Medicaid consumers with disabilities.
I urge you to oppose higher co-payments for drugs and to include strong
consumer
protections in any prescription drug prior authorization process, such as an
automatic emergency supply of drugs granted within two hours and notice if
a prescription is denied due to prior authorization."

I had really high interest rates on my home loan.
I saved thousands of dollars on home payments.
And you can too. Interest rates are as low as can be,
And Yes Even you can take advantage of this.
This is how.
Stop in and fill out this thirty-second form, to
Begin the money saving process.
http://aaahelp.4ever.cc
Get a 100% free custom quote even
If you have bad credit. Our specialists will
Work with you exclusively to save you the most money possible.
This email was sent because you joined our group.
If you do not wish to recieve any emails, unsubscribe.

Adapted from The Daily Motivator

Wednesday, June 23, 2004

The beauty of this day

This is a beautiful day, a priceless gift never to be matched and filled with unique and wonderful possibilities. This is a beautiful day, and you can make it even more so simply by experiencing it.

Today's beauty may not be obvious at first. After all the problems and injustices have a way of demanding your attention, but they do not have to blind you to the beauty of this day. The beauty and positive possibilities are always there no matter how loudly the difficulties may shout.

The beauty of this day has no need to shout or scream. The more peaceful your spirit becomes the more fully you will know and experience this beauty.

Many things will happen today in this busy, complicated world, and the beauty of this day remains a steadfast reality enveloping it all.

The beauty of this day needs no push or promotion. It is always there, and it is yours.

-- Ralph Marston

[INLINE]
~Joyce [INLINE]
Embrace life as a jewel instead of a battlefield, and then landmines become goldmines.

We would like to remind you of this upcoming event.
"Challengers' MS Support Group Mtg
Date: Wednesday, June 23, 2004
Time: 11:30AM - 2:00PM EDT (GMT-04:00)
This MS Support Group meets every other Wednesday in the
basement of St. William the Abbot RC church at 2000 Jackson Ave
in Seaford, NY

the simple polls we see on so many web sites are actually more a
view into your own self than a story of group thinking.In teh
24+years of having MS I have met so many different people.the
extreams run from 1. I'm so depressed and mad about having MS that I
stay fairly close to home and only go out for the doctor's
appointments.My husband mad me a ramp but i refuse to be seen in my
wheelchair.
2. the opposite is the person who although very visabily disabled
goes to all kinds of activies and nearly on a daily basis has soem
activity which exposed him/her to others ,most of which are abled
bodied .
3. Then most of the rest of us will be inbetween in a continunum
of of self adjustment to the disability.
Richard

Enter your vote today! A new poll has been created for the
MS_Community group:
How does your disability hold you
back ,or hasn't it done so
o I gave up a lot of things I used to do
o I've has a disability so long I have woven a whole new life style
o As progression creeps on ,I get less done
o I wonder sometimes if I'll ever get out of this life cured
o I have accepted the fact of no cure in my life time
o The hobbies I have been attracted to since aquiring MS have fed my interest
and have become a real leisure time attraction to me.
o Like many with a noticable disability I have learned to get by usually
because I have good assistive equipment such as a scooter.
o I have had to get by with much less money to spend since becoming disabled.
o My living quarters is very accessible
o Actually I have learned to get around the disabilities
o life has never been the same as before muy disability
o I wonder where it will all end
o I'm now happier than I ever expected when I was first dx and was full of
fear
o I love each day and have so many activies
o Time passes slow as I run out of energy and require a lot of rest
To vote, please visit the following web page:

Adapted from The Daily Motivator

Tuesday, June 22, 2004

Remember why

If you could do anything, what would it be? Why would you choose to do it?

Just for a moment imagine that there are no limitations or obstacles to get in your way. If you could create something just by willing it into being, what would it be and why?

You have probably complained to yourself or others about how hard it is to get ahead. Have you ever considered in detail how you would know when you got there and what you would do with your good fortune?

Look beyond the daily onslaught of problems and concerns. Look ahead to where you would like for it all to get you.

Remember why you have chosen the path that you are on. Remember why, and then resolve to make it all worthwhile and to fully live the meaning that is certainly there.

Let your mind and your spirit rise above the clamor. You will surely get where you choose to go when you regularly remember why.

-- Ralph Marston

[INLINE]

~Joyce [INLINE]
The sole purpose of a child's middle name is so he can tell when he is really in trouble.

Welcome to KeepMedia KeepMedia

-----Forwarded Message-----
From: Families USA <HealthAction@...
Sent: Jun 21, 2004 5:52 AM
To: jayneadler@...
Subject: Rx Drug Importation Update
Dear Jayne,
After sending our last message out late Friday afternoon, we received
word that the Senate Health, Education, Labor and Pensions (HELP)
Committee had put off action (mark-up) on prescription drug
importation legislation until after the July 4th recess. So, there are
no key votes this Thursday, June 24th. But legislators will be voting
soon! We hope you will continue to contact your Senators and urge them
to cosponsor and vote for the bill introduced by Senator Byron Dorgan
(D-ND), which has bipartisan support.
To read the letter from a coalition of labor and other groups,
including Families USA, that explains why we favor the Dorgan bill
over the weaker bill from Senator Judd Gregg (R-NH), click here. To
find information on contacting your Senators, click here.
http://www.familiesusa.org/site/R?i=0ZLhhWI2DnIDRYvcWDDmjg..
http://www.familiesusa.org/site/R?i=2CHaziWQOoQDRYvcWDDmjg..
HELP US SPREAD THE WORD: To forward this message to a friend or
colleague, click here.
http://www.familiesusa.org/site/R?i=wfIm4-Y-yq8DRYvcWDDmjg..
To unsubscribe from all future e-mail, paste the following URL into your
browser:
http://www.familiesusa.org/site/CO?i=xj3rh4Vkk1ohBWAH4sVGG48uFizeWeKm

Adapted from The Daily Motivator

Monday, June 21, 2004

Higher thinking

As you move through this day, make it a point to replace troubled thoughts with thoughts of peace. Replace thoughts of weakness with thoughts of strength.

Replace thoughts of limitation with thoughts of possibility. Replace thoughts of anger with thoughts of compassion.

Let go of any thoughts of frustration and helplessness. Put thoughts of creativity and empowerment in their place.

Gather your various and scattered thoughts together and point them all in a positive, productive direction. You will be amazed at the power that is yours when each thought is working to enhance the others.

Your thoughts determine what you decide to do with all that you have, and you determine what your thoughts will be.

Put them to work in a positive way moment by moment and day by day. Make them all thoughts that serve you well.

-- Ralph Marston

[INLINE]

~Joyce [INLINE]
The real art of conversation is not only to say the right thing at the right time but also to leave unsaid the wrong thing at the tempting moment!

D;
I take it from this study and the one done by the NICE group in
England/Wales both come to the conclusion that regardless of which
of the CRAB drugs you take there comes a time when many of us fall
throught the cracks and the drug was just an expensive stalling tatic
paid for by our insuranced .
Not only that these drugs were in many of our minds our only hope.I
guess this is escentially I read in the pamplets that betaseron has
published.
There was a time when the insurance companies would not pay for
these drugs after your doctor rated you SPMS.My doctor said he lied
about my status after I became SPMS .But now days they are paying for
the drugs.Any ways regardless of drugs many of us end up in
wheelchairs.
Richard

From: GT Tick (OLTICK@...)
Subject: BVT Trials for MS View: Complete Thread (15 articles)
Original FormatNewsgroups: alt.support.mult-sclerosis
Date: 2004-06-19 07:15:03 PST
http://www.mult-sclerosis.org/news/Aug2001/
MSAAFundsBeeVenomTherapyResearch.html
--
--
MSAA Funds Scientific Study
Through a $375,000 research grant, MSAA becomes the first MS
organization in the country to release fund

Glatiramer Acetate Provides No Significant Effect in the Treatment of
Multiple Sclerosis
Research News from The Cochrane Library
http://www.prnewswire.com/cgi-bin/stories.pl?ACCT=109&STORY=/www/
story/05-27-2004/0002182821&EDATE=
May 27, 2004
Source: Dr Luca M. Munari, M.D.
PRNewswire
One of the currently most widely prescribed treatments for multiple
sclerosis (MS), glatiramer acetate (Copaxone(R), Teva / Aventis), may
provide no significant benefit on the main outcomes measures in the
disease, namely either slowing the progression of MS or substantially
affecting the risk of clinical relapses over time. "At present there
is insufficient evidence to support future routine use of glatiramer
acetate in clinical practice and more data from randomised clinical
trials are needed," said Dr Munari, neurologist and member of the
Cochrane MS Review Group.
The review, carried out by members of the Cochrane MS Group,
incorporated the results of 646 patients with MS who participated in
four randomized, placebo-controlled clinical trials. The review
included both patients with relapsing-remitting MS and chronic
progressive MS (CPMS).
Glatiramer acetate is a random mixture of polypeptides derived from
the synthesis of four amino acids. It has structural properties
similar to myelin, the basic protein within the sheaths surrounding
nerves. Its mechanism of action is actually unknown, as it is for
beta-interferons. It is prescribed as a secondary alternative to beta
interferon, which is well established in the treatment of MS, a
chronic disease of the nervous system that affects young and
middle-aged adults and can lead to permanent disability.
Currently available data do not provide definite evidence that
glatiramer acetate shows any significant effect on disease
progression, measured as a sustained worsening in the Expanded
D

Adapted from The Daily Motivator

Sunday, June 20, 2004

Keep your integrity intact

When you abandon your integrity in order to get what you want, whatever you get will not be worth having. When you go against your own best judgment in pursuit of a token treasure or position, the victory will be empty.

Fulfillment and joy come from the accomplishments into which you put the best you have to offer. Rewards and victories are yours to treasure to the extent that they are expressions of your most firmly held values.

The value of the achievement depends on the values that went into it. There is no shortcut to a life of meaning. It cannot be bought or stolen. It can only be created. Be who you truly are while you work for what you truly desire. Keep your integrity intact, and the rewards will be sweet indeed.

-- Ralph Marston

[INLINE]

~Joyce [INLINE]
The older you get the tougher it is to lose weight because by then your body and your fat are really good friends.

The article below from NYTimes.com
has been sent to you by jayneadler@....
Thought this might be of interest.
jayneadler@...
/--------- E-mail Sponsored by Fox Searchlight

Adapted from The Daily Motivator

Saturday, June 19, 2004

Do something about it

One of the best ways to change a bad feeling into a good one is to do something positive about it. Bad feelings have their purpose, and this purpose is to spur you into action.

If you just sit there wallowing in negativity without doing anything about it, this brings you down in two ways: Not only do you feel lousy, but you also pass up the opportunity to be powerfully motivated by these lousy feelings.

When you take a positive cue from a negative feeling, things almost immediately begin to change for the better. As soon as you start to do something about it you are in control, and you are moving forward.

Take a positive step, and you go from being a victim to being a beneficiary of your negative feeling. Keep on going, and you will soon leave that negative feeling completely behind.

If you seem to be having a lousy day, it is not the day that is lousy; it is your lack of a positive response to it that makes it seem so bad.

Listen to what your bad feeling is attempting to tell you. Get busy, do something about it and you will turn it into a triumph.

-- Ralph Marston

[INLINE]

~Joyce [INLINE]
"I thank God for my handicaps for through them I have found myself, my work and my God."
~Helen Keller

I live on LI , in Merrick, NY.
Jayne

This story was sent to you by: Jayne
This is for the LI people on this group.

We would like to remind you of this upcoming event.
Kim's birthday!
Date: Saturday, June 19, 2004
Time: All Day
Kim is KimBla@...

Hello Jayne,

GREAT NEWS! Finally, we are moving in the right direction.
Thank for the email, have a nice day. By the way, are you a NY resident?
-myaloz
Jayne Adler <lemmoncake@...

Note: forwarded message attached.

-----Forwarded Message-----
From: "newsflash@..." <newsflash@...
Sent: Jun 18, 2004 1:13 PM
To: Jayne Adler <jayneadler@...
Subject: Examination for Multiple Sclerosis Specialists
Dear Colleagues,
The Consortium of MS Centers (CMSC) has collaborated with the Professional
Testing Corporation in developing an examination for Multiple Sclerosis
Specialists. The examination is meant to validate an individual's knowledge on
important aspects of MS care and treatment. The first testing period will occur
August 14, 2004 to August 28, 2004 at computer-based testing facilities through
out North America. Those candidates who successfully pass the examination will
earn the credentials of Multiple Sclerosis Certified Specialist (MSCS).The
application fee for the examination is $200.00 US and you can register for the
examination on line at http://www.ptcny.com. The application deadline is July
15, 2004.
The CMSC is happy to announce that there are scholarships available for those
who require assistance with the registration fee (support has been provided by
an unrestricted grant from Teva Neuroscience). Please visit our web site at
http://www.mscare.org for further details on the scholarship application process
(direct link is http://mscare.org/presentations.cfm?doc_id=304). The deadline
for scholarship submission is July 1, 2004.
We are very excited about this endeavor and hope you will participate in this
very rewarding experience.
Yours sincerely,
Colleen Harris
Chair of the Clinical Care Committee
CMSC

-----Forwarded Message-----
From: Chris Hilderbrant <childerbrant@...
Sent: Jun 18, 2004 12:04 PM
To: rochestercdr_list@...
Subject: CDR's Annual Disability Rights Top 10 / Bottom 10 Nominations
The Center for Disability Rights
Annual Top Ten / Bottom Ten
Disability Rights Victories and Disappointments
Nomination Form
The Center for Disability Rights is preparing our Annual Disability
Rights Ten Best and Ten Worst lists. We need your ideas! Nominees may
be people that support disability rights or oppose them. They may
also be organizations that ensure compliance with the ADA or just get
in the way! You can nominate buildings or services that are models for
accessibility or places that remain inaccessible 14 years after the
signing of the ADA!
Point fingers, name names and give credit where credit is due!
Fill out this form and return it by July 8th.
I nominate the following for the TOP TEN. (You may make multiple
nominations)
Please include nominee(s) and reason(s):

That has passed. It seems you have most of it.

~|__

( o )\_

Bill McCartney

Hotwheel@...

MrBill26@...

-----Forwarded Message-----
From: Research!America <ethompson@...
Sent: Jun 18, 2004 1:34 PM
To: ram_list@...
Subject: A New PARADE/Research!America Poll on Mens Health, June 20, 2004
A New PARADE/Research!America Poll on Mens Health
June 20, 2004
Look for highlights our latest poll in this weekends issue of PARADE
magazine. Just in time for Fathers Day, this special issue focuses on
male attitudes toward health and covers important topics in mens
health, such as depression, prostate health and infertility.
PARADE magazine is distributed by more than 340 Sunday newspapers
across the country, engaging 75 million Americans in conversation every
week. To view the complete results of the mens health poll, visit
www.researchamerica.org.
---
You may unsubscribe from our mailing list at any time by visiting
http://capwiz.com/ram/lmx/u/?jobid=41421217.

Adapted from The Daily Motivator

Friday, June 18, 2004

Appreciate the good things

The sunshine feels so much warmer after weeks of rainy days. Your loved ones seem so much more precious whenever they have been away.

You truly appreciate and value your good health after recovering from a difficult and prolonged illness. You learn new respect for financial discipline after working your way out of a burdensome debt.

It is easy and natural to appreciate the good things after you have experienced life without them, but sadly this can often be too late.

How very much better it is to appreciate the good things you have while you still have them! Not only can you appreciate them, but you can put them to positive and productive use.

Begin each day by counting your many blessings. Pay particular attention to the ones so overwhelmingly a part of you that you might otherwise take them for granted.

True abundance and gratitude are solidly linked. The more you appreciate the good things the more numerous they will be.

-- Ralph Marston

[INLINE]

~Joyce [INLINE]
Whatever you can conceive is as abundant as the air you breathe.

I don't chat on AOL but you can reach me through
email. ;)
Jayne

http://www.thepetitionsite.com/takeaction/906438248?ts

You have been sent a News 10 Now Article by Jayne [ JayneAdler@... ]
Thought you'd be interested in this.
A nursing home owned and operated by Oswego County is one step closer to being
bought out. A legislative committee voted to sell the Andrew Michaud nursing
home in Fulton to a company that operates an independent assisted living
facility in Oswego.
[ http://news10now.com/content/all_news/Default.asp?ArID=21683&SecID=83& ]

Dear MS_Community:
Jayne (JayneAdler@...) thought you would be interested in this item
from OregonLive.com.
http://www.oregonlive.com/newsflash/regional/index.ssf?/base/news-6/108740246424\
860.xml
Jayne says:
Thought you might interested.

Adapted from The Daily Motivator

Thursday, June 17, 2004

Get beyond

Get beyond the need to impress anyone, and you will then begin to truly impress everyone. Imagine the refreshing sense of fulfillment you will then know!

Get beyond the need to possess and control, and your world will be filled with abundance. You will see real value in every direction so it can be ready to be joyfully lived.

Get beyond the need to worry and you will be filled with a positive, productive energy. By living fully in the moment of now you will build the confidence and strength to handle whatever the future may bring.

Get beyond the need to blame and carry resentment from the past. You can then put all your energy and focus into making your way successfully forward.

Get beyond these limitations you have imagined for yourself, and the other limitations will begin to fall away as well.

Get beyond the petty negativity that only serves to hold you down, and the positive possibilities will be truly endless.

-- Ralph Marston

[INLINE]
~Joyce [INLINE]
More important than learning how to recall things is finding ways to forget things that are cluttering the mind.

--Lemmoncake;
while this is good news in the long run,as from mice to people
usually exceeds 5 years to a product on the market.It was also stated
that MS is a very complex disease,and not all will be helped.Does
this mean us in PPMS or SPMS?
Richard

Thursday, February 05, 2004
Montreal researchers have identified a key factor in multiple sclerosis, a
devastating disease of the nervous system.
News that controlling an enzyme could "turn off" the autoimmune disease
represents fresh hope for the 35,000 Canadians who suffer from MS's
debilitating
symptoms.
The enzyme has been shown to control the onset and progression of MS in
mice,
Sam David, a McGill University Health Centre neuroscientist, said.
"Blocking this enzyme has a remarkable effect in preventing disease and
relapses," said David, a McGill University medical professor whose findings=
are
to be published today in Neuron, a neuroscience journal.
"That means this particular enzyme is certainly a very good target for drug=
s"
that would block MS, he added.
In MS, the body's immune system attacks the myelin, the insulating membrane=
surrounding nerve fibres. Scarring - or sclerosis - impedes muscle co-
ordination
and vision, and can lead to paralysis.
The causes of MS is unknown.
David's discovery stems from eight years of research in an area unrelated t=
o
MS
- the role of iron in molecules after injury.
"We began to look at this particular enzyme (cPLA2) and whether it calls in=
the
immune cells to help clean up the debris, which is what you want after inju=
ry,"
he said.
In MS, there's an abnormal influx of these immune cells.
Not only was the enzyme present in mice with MS lesions, but treatment with=
a
chemical inhibitor of the enzyme halted the disease.
"It's a most exciting feeling - a eureka moment," David recalled of watchin=
g a
hypothesis bear fruit in laboratory experiments done by his doctoral studen=
t,
Athena Kalyvas.
But it's only a first step, he cautioned: "There's no way to predict whethe=
r it
will work in humans."
Current therapies focus on ways of reducing the frequency of MS attacks and=
on
slowing the progression of disability, said Deanna Groetzinger of the Multi=
ple
Sclerosis Society of Canada, which funds such research projects.
Other studies are looking at ways to stimulate nerve cells to produce new
myelin.
Current therapies are most effective early on in the disease, before severe=
disability sets in.
"But it's never 100 per cent. There's no guarantee you won't get worse over=
time," Groetzinger said. "MS is a complex disease, so this is really a prom=
ising
step forward.
"If this discovery could prevent the disease, that would be a good-news sto=
ry."
The next step is to move from mice to humans to ensure the treatment is saf=
e
and
effective.
__
*´¯`·.¸¸.·´¯`·.¸¸.·´¯`·-

Adapted from The Daily Motivator

Wednesday, June 16, 2004

Imagine the future

You do not know for sure what will happen in the next hour, day, week or year. When you can imagine what may happen, it pays to imagine the very best.

Your imagination by itself does not make it so, but it can certainly line up many factors in your favor.

The more you imagine your most desired and treasured scenario the more clearly you can visualize the actual details. The details are important because they provide specific goals upon which you can focus.

When you can clearly see yourself being there, you can see much more clearly how to get there. If you can imagine the path to your dreams, then you can start to actually walk it.

Imagining a bright and shining future can serve to draw you toward such a state. Fill that imagined future with whatever you treasure the most.

Play an active role in your own future. Imagine with passion and detail how you would most like it to be.

-- Ralph Marston
[INLINE]

~Joyce [INLINE]
Create a positive experience for those with whom you come into contact.

This item was forwarded to you from Jayne on the Christopher Reeve Paralysis
Foundation web site with the comment:
I thought this would be of interest.
This item is also available on the web at:
http://www.christopherreeve.org/hopenetwork/hopenetwork.cfm?ID=660&c=67
Congress Must End the Medicaid Bias
September 17, 2003
Read this insightful OpEd from Jim Ward, President of ADA Watch and the
National Coalition for Disability Rights.
Opinion: Congress Must End the Medicaid Bias
by Jim Ward (As Submitted to the Washington Post)
While America spends billions to secure freedoms for those in
foreign lands, Congress is ignoring domestic legislation that
would impact the civil liberties of millions of Americans. For
the elderly - as well as for younger people with physical,
developmental and mental disabilities - the result is that
countless American citizens are being segregated away from their
families and communities and forced to live in institutions and
nursing homes.
Congress can end this segregation by passing the Medicaid
Community Services and Supports Act (MiCASSA). This bill
eliminates the institutional bias in the Medicaid program that
prevents Americans from choosing whether they want long-term care
in a nursing home or in their own home and community.
If passed, MiCASSA would end Medicaid's archaic policy that
allows funding of nursing home care for elders and people with
disabilities but refuses to help those who choose to hire
personal aides so they can live and work in their own home and
community.
Opponents of MiCASSA have raised concerns about the bill's
potential costs. In an environment of tax cuts and skyrocketing
military expenditures, the MiCASSA debate could certainly
illustrate a discussion regarding our government's spending
priorities, but the reality is that the cost concern is a
groundless red herring. In fact, home and community-based care as
a rule costs less than the care provided by nursing homes and
other institutions.
The issue being brought to Congress is not new, but it is
touching more and more Americans each year. Every day, millions
of people need assistance with basic tasks such as bathing,
dressing, eating or taking medications. Many of them are elderly,
and many have a disability. Those who prefer to receive such care
at home or other community-based settings quickly learn that
Medicaid has stacked the deck against them. Federal law only
requires states to provide Medicaid funding for institutional
care, trapping thousands of Americans in nursing homes and other
institutions.
The fear of being forced into an institutional setting far from
their home or community contributes greatly to Americans' fear of
aging. Many over the age of 50 are struggling with the prospect
of finding long-term care for their parents. Sadly, federal
policy discriminates against people who wish to remain living and
working in their own communities with family and friends.
In addition to the many millions of our elders being forced into
nursing homes, there are more than two million young people with
disabilities who are being denied freedoms by Medicaid rules.
Anita Cameron knows what that feels like. At age 19, she was
suffering frequent seizures and was left with no other options
but a nursing home. Today, receiving community-based assistance
from medical aides, Cameron lives and works on her own in Denver,
Colorado.
Cameron is one of the 160 remarkably determined people with
disabilities-many of whom formerly lived in nursing homes-who are
completing a 144-mile march from Philadelphia to Washington,
D.C., to put a face on the issues surrounding MiCASSA. They are
urging Congress to approve MiCASSA, a sensible and cost-effective
measure to give people with disabilities of all ages a choice in
where they live and receive Medicaid services.
When people need long-term care, where they receive that care
should be their choice, not the federal government's. More than a
decade after passage of the Americans with Disabilities Act (ADA)
-- and even after the Supreme Court affirmed in the Olmstead
decision the rights of people with disabilities to live in the
most integrated setting -- too many individuals with disabilities
are needlessly and unwillingly isolated inside nursing homes and
other institutions.
Those who worked 13 years ago to enact the ADA, including a
majority in both parties, hoped to secure a new level of
independence and inclusion for millions of individuals. While the
law has brought progress, Medicaid's uneven playing field has
hampered this momentum and perpetuated dependence and exclusion
for many people with disabilities of all ages. Congress should
end the Medicaid institutional bias by passing MiCASSA and
enabling those who are elderly or who have disabilities to make
their own choices.
Jim Ward is the president of ADA Watch and the National Coalition
for Disability Rights.

-----Forwarded Message-----
From: Medscape Allergy and Immunology <Medscape_Allergy@...
Sent: Jun 16, 2004 11:05 AM
To: jayneadler@...
Subject: Combination Therapy for Allergic Rhinitis

Wendy Sullivan form RAMS

Wsullivan@...

-----Forwarded Message-----
From: Chris Hilderbrant <childerbrant@...
Sent: Jun 15, 2004 1:40 PM
To: Jayne Adler <jayneadler@...
Subject: MS statewide groups
Hi Jayne,
Do you know anyone in the statewide MS Society, or any other statewide MS
groups?
Specifically, we are trying to get letters of support for the Nursing Facility
Transition and Diversion Waiver bill. While the bill flew through the Senate
and will be passed by the Assembly tomorrow (with the corrections we all asked
for!) - we are expecting that there might be more resistance from the Governor,
or later when we have to work with the Department of Health.
So, if you have any contacts that would be great. When the wiaver is developed,
it should be a huge benefit to people with MS. Right now, I think we are
working with more people with MS in nursing homes than any other disability...
at least among people who are not senior citizens. With the waiver, people with
MS, MD, spinal cord injury and many other disabilities would be able to get
services like those that have been provided very successfully to people with
brain injuries through the TBI waiver.
Any, thanks for your support with all of the action alerts and if you have any
good info for me now, that would be great too!
take care,
Chris

Adapted from The Daily Motivator

Tuesday, June 15, 2004

Enjoying it

You might spend much of your day striving for more, but you already have so much. Spend some time enjoying it.

Enjoyment takes little or no effort and does not have to detract from what you are doing. In fact enjoyment will add real value to all of your efforts.

Enjoyment takes no special skills or training. All you need is the intention to enjoy where you are, and suddenly you are doing it. Don't focus on the problems; focus on how fortunate you are to be here and able to make a positive contribution.

The next time you are in a situation that you normally would find annoying, frustrating or dreary you can decide that you will enjoy yourself. Put a smile on your face with a lightness in your spirit and enjoy being you simply because you have decided to do so.

A moment lived with enjoyment can bring hundreds of times more value than a moment spent in dismay. Enjoy life's richness, and there will be so much more.

-- Ralph Marston

[INLINE]

~Joyce [INLINE]
It is a great thing to do little things well.

Adapted from The Daily Motivator

Monday, June 14, 2004

Yours to use

You have just now arrived at this moment. Whatever may have brought you here is now yours to use in moving forward.

Maybe the journey has been going well. If so, expand on what you have already found to work so well for you.

Maybe there have lately been more downs than ups. If so, then take this knowledge of what doesn't work and use it to find what does.

You cannot change what has already happened, but you can take something positive and valuable from all of it.

Hold on to the love, laughter and lessons. Let go of the disappointments, setbacks and regrets.

Today is a new day, and this gives you the chance to make something new and positive out of whatever you already have. Make every reason a reason to move forward, and you will find yourself doing just that.

-- Ralph Marston

[INLINE]

~Joyce [INLINE]
When the world pushes you to your knees, you are in the perfect position to pray.

May I have any info you' like posted with your Aug. birthday, please?
Jayne

Adapted from The Daily Motivator

Sunday, May 13, 2004

Believe it

What do you truly believe you can do? The difference between impossible and accomplished is largely a matter of belief. Sincere belief can make it happen.

Believe that you can do it. If it is possible for someone else, it is possible for you also. You have just as many hours in the day as anyone. You are just as capable of learning as anyone. You can take action. You can develop skills. You can find the needed resources. You can do it.

If there is something which you have trouble believing you can accomplish, break it down into easily believable chunks. For example, if you have problems sincerely believing you can make a million dollars, break it down until it is something you can believe. Surely you will have no trouble believing you can make a hundred dollars.

So go out an do it. Make that hundred dollars. Then just repeat it and expand on it. You are well on your way to a million dollars. If you don't believe you can change the world, perhaps you will find it easier to believe you can help one person. Go out and help this one person, and you are on your way to truly changing the world for the better.

Do what you can. Your belief will grow, and the quality of your life will grow along with it. Believe it a little at a time if necessary, and make it happen.

-- Ralph Marston

[INLINE]

~Joyce [INLINE]
Life is not a journey to the grave with the intention of arriving safely in a well-preserved body but rather to skid in broadside, thoroughly used up, totally worn out and loudly proclaiming., "Wow; that was one heck of a ride!"

Mothers May Be Origin of Children's Multiple Sclerosis Risk
http://my.webmd.com/content/article/88/99701.htm
May 28, 2004
Daniel DeNoon
WebMD Medical News
A person's risk of multiple sclerosis seems to come from their mother,
new data shows.
Multiple sclerosis is 20 to 50 times more common in people whose
parents have the complex and poorly understood disease. But it's not a
simple matter of a single gene being passed on from generation to
generation. Researchers don't know whether multiple sclerosis comes
from a person's genes, from a person's early environment, or from a
complex interplay between the two.
Now it looks as though an important cause of multiple sclerosis may be
linked to mothers. The information comes from a clever study led by
George C. Ebers, MD, director of the department of clinical neurology
at England's Oxford University. They compared multiple sclerosis
frequency in the full-sisters and full-brothers to that of the half
sisters and half brothers of people with multiple sclerosis. This
study's design could help determine which parent, if either, is having
an affect on multiple sclerosis risk.
They found that having a full-sister or full-brother with multiple
sclerosis increased a person's risk of multiple sclerosis by 3%.
Sharing only a mother with someone with multiple sclerosis increased a
person's risk by a similar amount: 2%. But sharing only a father
increased risk only by 1%.
"The difference in risk suggests a maternal parent-of-origin effect in
multiple sclerosis susceptibility," Ebers and colleagues write in the
May 29 issue of The Lancet.
Women get multiple sclerosis twice as often as men. Whether this is
related to the Ebers team's current findings is not clear.
The researchers note that there are several possible explanations for
the link to mothers. One is that mitochondrial genes -- genes
contained in the power-generating structure in cells, which mothers
pass on directly to children -- play a role in multiple sclerosis.
Another theory is that multiple sclerosis is caused by imprinted genes
(genes that are active only when passed on by a particular parent). Or
the condition might not be genetic at all: Events that happen in the
womb or during birth may play a major role.
An editorial accompanying the study comes from Mara Giordano and
Patricia Momigliano-Richiardi of Eastern Piedmont University, Novara,
Italy.
"Despite the new data, the nature-nurture dilemma remains," they
write. "The findings of Ebers and colleagues do, however, give us some
clues about directions for future research."
Copyright © 2004, WebMD

Adapted from The Daily Motivator

Saturday, June 12, 2004

Just one

When it seems that you are overwhelmed with problems, pick just one and go to work on it. Suddenly the momentum will shift in your favor.

When you feel helpless to make a difference, stand up and take just one small step forward. You will discover that you can indeed make a difference.

You are not going to solve all the problems of the world before bedtime, but you can take many positive, productive steps in this direction.

It sure beats sitting around worrying about how bad things are. All the worrying in the world cannot equal the power of just one positive step.

Once you take this one step forward you will find yourself wanting to do it again and again. Just one step can ignite your passion, and there is no telling how far this will take you.

When you feel that there is no use in making the effort, this is precisely the time when even the smallest effort can make an enormous positive difference. Commit to taking just one step, and feel how great it can be!

-- Ralph Marston

[INLINE]

~Joyce [INLINE]
Others can stop you temporarily, but only you can do it permanently.

Would those attending inperson MS Support Group meeting be willing to
share these on the MS_Community? If so, merely email me with the info & I'll
post it. Thanks, Jayne

-Life After MS is something all of us have to decide on.We can't just
sit about and watch the TV.That would dull the mind faster than MS
can do it.The slow death sentence pronounced by doctors is in fact
the near best they can do with a disease that is of unknown origin
and has no cure,just medicines that slow down the progression.Who
does the MNSS think they are fooling?
I have had to change my who attitude about life and what I can do
since MS started .In the beginning I thought I would get as bad off
and many I have seen at the huge local chapter of MNSS monthy
meetings I was attending. Some couldn't even propell their own
wheelchairs.This got to me as I crutched it there and back via the
local bus system. Now 24 years latter I find I can't get about any
other way except by scooter of wheelchair.My legs have gone just
useless.Fortunately they haven't started to swell up as some I have
seen.
Enough of the pitty myself mode .Getting back to activies after MS
we all need to think of something we can still shine at.I become a
male srecretary,and I'm good at it.Fortunately my brain is still
strong and so are my arms.
Richard

So sorry you need to leave. Is anyone else going to moderate this list? I'm moderating several other lists, so if you need someone to do it for a bit let me know. Take good care of yourself!
Irene

Life After Multiple Sclerosis
http://www.phoenixoregonnews.com/articles/index.cfm?artoid=178799
Monday, May 31, 2004
Russ Miles
Phoenix Oregon News
MS (Multiple Sclerosis) is a dread disease diagnosis decree whereby
victims are given a SLOW DEATH sentence. The jury, made up of medical
doctors or a panel of specialists, examines the body of evidence. It's
your body, with its tingling hands, impaired mobility, pain, and
abnormal responses to their expensive tests. Once they hand down the
verdict, you are told "There is no escape." Just as there is no known
cause, millions of once healthy men and women are expected to accept
the fact that there is no known cure. To me, it was the equivalent of
having a somber judge say, "May God have mercy on your soul!"
About the author, MS, and Why FSBO (in his own words):
MS forced me toI retire from real estate in SW Washington, but only
when I could no longer walk. Over three years previous, the doctors
had said I needed to "Get rid of stress and stop working." In denial,
I was slow to accept Multiple Sclerosis. Who, after all, would embrace
a diagnosis of the dread disease of no known cause, and for which
there was no cure? I continued to operate my own real estate company,
increasing the number of experienced agents who required less hands-on
supervision.
Putting renters in my house, I moved closer to my office, using a
handicapped scooter to get back and forth on those days when I didn't
have appointments set up to 'List' or 'Show' homes. I refused to give
up driving because one leg still worked, most of the time.
In hidden panic, I began to make more hasty decisions. On a week that
required my personal intervention on behalf of two of my agent's real
estate transactions, I decided to sell my company. For a coffee cup, I
traded my principle share of the real estate corporation to my new
partner (another hasty decision), just to get out. I had no problem
obtaining an Associate Broker position with one of the major
corporations.
When it became apparent, even to me, that I could no longer provide
the level of service I expected my clients to have, I took the Social
Security Disability option. Gritting my teeth, while the mandatory
waiting period ticked away, I tried to decide what to do with the
remaining years of my life. Although I had once owned art stores, even
taught oil painting, always the optimist, even I could not paint a
portrait of future prosperity. I think they had a special on despair
at the time, and I considered trading in my depression on it.At 53
years of age, with a pre-teen daughter yet to raise, and an ex-wife
who couldn't work, life looked pretty bleak.
A good friend suggested that I write a book. As I had published two
poetry books twenty-five years before, I considered the possibility.
In an attempt to overcome personal depression, I decided to write
about making better choices. I chose a novel format because it allowed
the freedom to develop hypothetical scenarios, involving fictional
characters, while forcing awareness of real dangers. I wanted to make
a compelling case for right choices, not just in marketing ones home,
but in all aspects of life.
I've made a lot of mistakes. Most of us do. We live in troubled,
unpredictable times. People must contend with changing economic
issues, employment disruptions, family problems, health upsets, crime,
and consequences. Through awareness, we can perhaps gain clarity when,
standing flat-footed over home plate, the curve ball comes while we
were expecting a fast pitch.
For Sale By Owners: FSBO www.FSBONovel.com is a novel about people.
Not perfect people. It begs the question, "What would For Sale By
Owners do if they knew they were really buying trouble?" As former
real estate broker, I am qualified to shed some light on this often
un-addressed area of concern. Most agents are reluctant to tell people
just how dangerous it is to open their doors to strangers.
Understandably, people who must sell homes do not want to pay
brokerage fees, if they can avoid it. It is, absolutely their right to
sell their homes themselves. But all too often, the man says, "We can
sell it ourselves, Honey," pops a FOR SALE BY OWNER sign in the yard,
and goes off to his work. His wife then places an ad in the local
newspaper, answers the phone, and sets appointments for the supposedly
interested buyers to come see their home for sale. The danger is
minimized.
I've had client wives tell me they had prayed that no one would call.
Then, peeking out the curtains, they had decided not to answer the
door. My father once told me, "Son, all crooks have honest faces."
What dad meant is that you can't tell, by looking at someone, what
their real intentions are.
If an effort to be professional, most agents do not wish to alarm or
alienate home sellers who might list with them, later. I have no such
vested interest.
Even real estate agents recognize they are placing themselves at risk
when showing houses. Every year, many are abducted, robbed, murdered,
and raped in this country.The National Association Of Realtors
constantly warns agents to vigilant, careful whom they work with. Many
Realtors© will no longer do "Open Houses" because it is simply too
dangerous. The commission reward of marketing a home this manner, to
them, is not in proportion to the risk. Yes, I am passionate about
the problem. My book doesn't mince words. The serial rapist adds an
eerie element, gives a fractured face to one possible perpetrator.
The diverse cast of characters, each with their own perspective, is
largely unaware that they even have problems. Each is imperfect. All
are preoccupied with their own survival. Maybe, through increased
awareness, there is hope for us all?
For Sale By Owners: FSBO by Russ Miles, ISBN 0-595-28703-4 $17.95 is
available at discounted prices, Adobe e-book and hard cover editions
too, via the author's website www.FSBONovel.com It is,also available
through the publisher iUniverse, www.iuniverse.com., Amazon.com,
Barnes & Noble.com, and at textbookx.com
Copyri

-----Forwarded Message-----
From: MEDLINEPLUS-DIABETES@...
Sent: Jun 11, 2004 1:56 PM
To: MEDLINEPLUS-DIABETES@...
Subject: This week in DIABETES
This week's news:
Breathalyzer Detects Diabetes in One Blow (06/10/2004, United Press
International)
http://www.nlm.nih.gov/medlineplus/news/fullstory_18312.html
Selenium May Promote Type 2 Diabetes (06/10/2004, United Press International)
http://www.nlm.nih.gov/medlineplus/news/fullstory_18314.html
Blood Pressure Drugs Improve Survival for Diabetics (06/10/2004, Reuters Health)
http://www.nlm.nih.gov/medlineplus/news/fullstory_18298.html
Gene Variation Linked to Pregnancy Related Diabetes (06/09/2004, Reuters Health)
http://www.nlm.nih.gov/medlineplus/news/fullstory_18263.html
New Devices May Offer Painless Blood Sugar Tests (06/08/2004, Reuters Health)
http://www.nlm.nih.gov/medlineplus/news/fullstory_18243.html
Heart Failure Rate High in People with Diabetes (06/08/2004, Reuters Health)
http://www.nlm.nih.gov/medlineplus/news/fullstory_18242.html
Immune Therapy Stops Diabetes in Mouse Study (06/08/2004, Reuters Health)
http://www.nlm.nih.gov/medlineplus/news/fullstory_18239.html
Diabetes Linked With Colorectal Cancer (06/08/2004, United Press International)
http://www.nlm.nih.gov/medlineplus/news/fullstory_18225.html
Pfizer's Lipitor Halves Stroke Risk in Diabetics (06/07/2004, Reuters Health)
http://www.nlm.nih.gov/medlineplus/news/fullstory_18218.html
This week's new links:
Autonomic Neuropathy
http://www.mayoclinic.com/invoke.cfm?id=DS00544
Mayo Foundation for Medical Education and Research
Development of Islet Cell Autoantibodies and Type 1 Diabetes
http://www.annals.org/cgi/content/full/140/11/I-64
American College of Physicians
TrialNet Launches First Studies in Type 1 Diabetes
http://www.niddk.nih.gov/welcome/releases/06-05-04.htm
National Institute of Diabetes and Digestive and Kidney Diseases
For more information on DIABETES see these MedlinePlus topics:
Diabetes
http://www.nlm.nih.gov/medlineplus/diabetes.html
Diabetes and Pregnancy
http://www.nlm.nih.gov/medlineplus/diabetesandpregnancy.html
Diabetic Diet
http://www.nlm.nih.gov/medlineplus/diabeticdiet.html
Diabetic Eye Problems
http://www.nlm.nih.gov/medlineplus/diabeticeyeproblems.html
Diabetic Foot
http://www.nlm.nih.gov/medlineplus/diabeticfoot.html
Diabetic Kidney Problems
http://www.nlm.nih.gov/medlineplus/diabetickidneyproblems.html
Diabetic Nerve Problems
http://www.nlm.nih.gov/medlineplus/diabeticnerveproblems.html
Hypoglycemia
http://www.nlm.nih.gov/medlineplus/hypoglycemia.html
Juvenile Diabetes
http://www.nlm.nih.gov/medlineplus/juvenilediabetes.html
Visit the MedlinePlus web site at: http://medlineplus.gov
**** MEDLINEPLUS-DIABETES NOTICE ****
You are receiving this message as a subscribed member of MEDLINEPLUS-DIABETES, a
discussion
list available from the National Library of Medicine.
To unsubscribe, send e-mail to listserv@... with "SIGNOFF
MEDLINEPLUS-DIABETES"
in the body of the message.
For LISTSERV commands and Frequently Asked Questions,
see http://www.nlm.nih.gov/listserv/resources_assistance.html
**************************

I'm going to retire from the Web for awhile now. Be seeing you. ;)
Jayne

Adapted from The Daily Motivator

Friday, June 11, 2004

Undeniably good

"I know in my heart that man is good.
That what is right will always eventually triumph.
And there's purpose and worth to each and every life."
-- Ronald Reagan

Life is difficult, challenging and painful at times, but at its very core life is undeniably good.

The world is ripe with injustice and tragedy, but goodness always finds a way to be where it is needed most.

What is wrong and false can often seem powerful and compelling. Eventually each falsehood consumes itself and collapses under the burden of its own lies and inconsistencies. Life's goodness not only endures; it grows stronger and more solidly entrenched as it survives each passing challenge.

Often life's purpose seems to get buried beneath the confusion, complexities, distractions and the pressing demands. Through it all this purpose patiently remains ready at any moment to be lived and fulfilled.

Celebrate, respect, enjoy, give to and make the most of life. It is a gift more precious and more positively powerful than anyone can imagine.

-- Ralph Marston

[INLINE]

~Joyce [INLINE]
I have yet to find any redeeming value in judgments.

Adapted from The Daily Motivator

Thursday, June 10, 2004

Confident thoughts

What if a thousand people were to come up to you today and express serious doubts about what you are doing and your ability to get it done? Think of how much your confidence would be shaken!

Now imagine how stunningly different it would be if a thousand people today were to offer you a word of encouragement and to express enthusiasm for what you are doing. You would be so completely confident that nothing could stop you.

In fact you will receive a thousand opinions today. The vast majority of them will not come from strangers. They will come from someone you have believed and trusted all your life. They will come from you.

In every moment and in each thought you think you have the opportunity to express confidence in yourself and in the value of what you are doing. The power of these thoughts can add up very quickly.

Every moment you are thinking something, and you can choose what these thoughts will be. Choose the ones that will lift you up and push you positively forward.

-- Ralph Marston

[INLINE]

~Joyce [INLINE]
Success is getting up one more time.

Potential synergistic effect of Copaxone® and minocycline to be
studied in relapsing-remitting multiple sclerosis
New study in Canada evaluating the potential add-on effect
http://www.newswire.ca/en/releases/archive/May2004/31/c9014.html
May 31, 2004
Source: Teva Pharmaceutical Industries Ltd.
CNW Telbec
A new study assessing the add-on effect of minocycline in
relapsing-remitting multiple sclerosis (RRMS) patients with active
disease who are treated with Copaxone® (glatiramer acetate injection)
has just been initiated at four major investigation sites in Canada:
Calgary, Vancouver, Edmonton and Montreal.
"The primary efficacy objective of this study is to evaluate the
add-on treatment effect of oral minocycline in subjects treated with a
daily injection of glatiramer acetate as measured by various MRI
parameters," said Dr. Luanne Metz, professor at the Department of
Clinical Neuroscience of the University of Calgary, and principal
investigator. "Other study objectives include the assessment of
tolerability and safety of this combination."
Approximately 50 patients will be evaluated in the four designated
study centers for a total duration of nine months. This study is a
double blind, randomized study designed to compare the combination of
glatiramer acetate plus oral minocycline to glatiramer acetate plus
placebo.
"This particular study is exciting because it provides us with the
perfect opportunity to determine if there are synergies between
minocycline and glatiramer acetate that would provide even greater
control in managing MS," added Dr. Metz.
Minocycline, an antibiotic, eliminates bacteria that cause pneumonia,
acne, and infections of skin, genital and urinary systems, and the
central nervous system.
Copaxone® is indicated for the reduction of the frequency of relapses
in relapsing-remitting MS. In controlled clinical trials, the most
commonly observed adverse events associated with the use of Copaxone®
which occurred at a higher frequency than in placebo treated patients
were: injection site reactions, vasodilation, chest pain, asthenia,
infection, pain, nausea, arthralgia, anxiety and hypertonia.
Copaxone® is now approved in 42 countries worldwide, including Canada,
the U.S., Australia, Israel, and all the European countries. In
Europe, Copaxone® is marketed by Teva Pharmaceutical Industries Ltd.,
and Aventis Pharma. In North America, Copaxone® is marketed by Teva
Neuroscience.
Teva Pharmaceutical Industries Ltd., headquartered in Israel, is among
the top 25 pharmaceutical companies in the world. The company
develops, manufactures, and markets generic and branded human
pharmaceuticals and active pharmaceutical ingredients. Close to 90
percent of Teva's sales are in North America and Europe. Teva's
innovative R&D focuses on developing novel drugs for diseases of the
central nervous system.
Copaxone® is a registered trademark of Teva Pharmaceutical Industries
Ltd.
This release contains forward-looking statements, which express the
current beliefs and expectations of management. Such statements are
based on current expectations and involve a number of known and
unknown risks and uncertainties that could cause Teva's future
results, performance or achievements to differ significantly from the
results, performance or achievements expressed or implied by such
forward-looking statements. Important factors that could cause or
contribute to such differences include Teva's ability to successfully
develop and commercialize additional pharmaceutical products, the
introduction of competitive generic products, the impact of
competition from brand-name companies that sell their own generic
products or successfully extend the exclusivity period of their
branded products, Teva's ability to rapidly integrate the operations
of acquired businesses, including its recent acquisition of Sicor
Inc., the availability of product liability coverage in the current
insurance market, the impact of pharmaceutical industry regulation and
pending legislation that could affect the pharmaceutical industry, the
difficulty of predicting U.S. Food and Drug Administration and other
regulatory authority approvals, the regulatory environment and changes
in the health policies and structure of various countries, acceptance
and demand for new pharmaceutical products and new therapies,
uncertainties regarding market acceptance of innovative products newly
launched, currently being sold or in development, the impact of
restructuring of clients, reliance on strategic alliances, exposure to
product liability claims, dependence on patent and other protections
for innovative products, fluctuations in currency, exchange and
interest rates, operating results and other factors that are discussed
in Teva's Annual Report on Form 20-F and its other filings with the
U.S. Securities and Exchange Commission. Forward-looking statements
speak only as of the date on which they are made, and the Company
undertakes no obligation to update publicly or revise any
forward-looking statement, whether as a result of new information,
future developments or otherwise.
Copyright © 2004, Canada NewsWire Ltd.
Post a follow-up to this message
Message 2 in threadFrom: Rob Duncan (robduncan@...)
Subject: Re: Study of Copaxone/Minocycline Combination for RRMS
View this article onlyNewsgroups: alt.support.mult-sclerosis
Date: 2004-06-10 17:34:16 PST
Look for this study to be particulary effective.

Hi Jayne,
tbayuk@... But I received your birthday card last week.
Thank you.
Regards,
Tom

Your birthday's coming & I don't have a workable mail addy on the calendar.
Please reply. Thanks, Jayne

Intranasal administration of interferon beta bypasses the blood-brain barrier
to target the central nervous system and cervical lymph nodes: a non-invasive
treatment strategy for multiple sclerosis
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&
dopt=Abstract&list_uids=15145605
J Neuroimmunol. 2004 Jun;151(1-2):66-77
Ross TM, Martinez PM, Renner JC, Thorne RG, Hanson LR, Frey WH 2nd.
Alzheimer's Research Center, Regions Hospital, 640 Jackson St., St. Paul,
MN 55101, USA.
Intranasal (IN) administration of IFNbeta-1b was examined as a route for
targeted delivery to the rat central nervous system (CNS).
Intranasal administration resulted in significant delivery throughout the CNS
and cervical lymph nodes with low delivery to peripheral organs.
At similar blood levels, intravenous (IV) administration of IFNbeta-1b yielded
88-98% lower CNS levels and 100-1650% greater peripheral organ levels
compared to intranasal.
Autoradiography confirmed much greater delivery to the CNS with intranasal
administration.
Intranasally administered IFNbeta-1b reached the brain intact and produced
tyrosine phosphorylation of IFN receptor in the CNS.
Intranasal administration offers a non-invasive method of drug delivery for
multiple sclerosis (MS) that bypasses the blood-brain barrier (BBB) and
directly targets the CNS and lymph nodes.

Genencor Scientists Show Reduced Immunogenicity of Modified Interferon-
Beta Protein
http://www.prnewswire.com/cgi-bin/stories.pl?ACCT=109&STORY=/www/
story/05-25-2004/0002181074&EDATE=
May 25, 2004
Source: Genencor International, Inc.
PRNewswire
Scientists from Genencor International, Inc., have demonstrated in an in vi=
vo
model that a new variant of recombinant interferon-beta reduces the
immunological response to the protein. Administration of recombinant
interferon-beta is the standard-of-care treatment for Relapsing Remitting
Multiple Sclerosis (RRMS) patients, and the production of neutralizing
antibodies against interferon-beta may reduce the effectiveness of this
treatment in up to 30 percent of RRMS patients. The Genencor data,
published in the current issue of Journal of Immunology, extend studies
published earlier this year (Genes and Immunity (5 (1), 1-7, 2004) by
providing an in vivo test of the I-mune(R) method for creating reduced
immunogenicity protein variants.
Using Genencor's proprietary I-mune(R) assay and platform, the scientists
generated a variant of interferon-beta by changing an amino acid at a singl=
e
position in the immunodominant CD4+ T cell epitope region of the protein. =
The immunodominant epitope in the parent protein had been shown in an
earlier report published by Genencor scientists to be critical for immunolo=
gic
responses in both humans and Balb/c mice.
The scientists showed that T cells from mice immunized with the variant and=
challenged with the parent interferon-beta had significantly lower prolifer=
ation
than has been seen following immunization with unmodified interferon-beta. =
Further, the IgG antibody response to the variant interferon-beta molecule =
was almost completely absent. The data showed that the single amino acid
change did not disrupt the overall structure of the interferon-beta protein=
as
evidenced by no alterations in antibody-binding epitopes. Importantly, the=
resulting variant interferon-beta (knownas I129V) was equally active as the=
original molecule in functional assays.
"Our I-mune assay had identified both dominant and subdominant epitopes
within interferon-beta. The current findings suggest that modification of =
the
immunodominant epitope eliminates the need to modify other subdominant
ones, thus reducing work needed to create new generations of important
protein drugs," said Mark A. Goldsmith, M.D., Ph.D. Genencor's senior vice =
president, Health Care. "We believe that our technology can be used to
minimize immunogenicity problems that are frequently encountered in late-
stages of protein drug development in the absence of immuno-optimization." =
About Genencor
Genencor International is a diversified biotechnology company that develops=
and delivers innovative products and services into the health care, agri-
processing, industrial and consumer markets. Using an integrated set of
technology platforms, Genencor's products deliver innovative and sustainabl=
e
solutions to improve the quality of life. Genencor traces its history to 1=
982 and
has grown to become a leading biotechnology company, with over $380
million in year 2003 annual revenues. Genencor has principal offices in Pa=
lo
Alto, California; Rochester, New York; and Leiden, the Netherlands.
This press release contains forward-looking statements as defined by the
Private Securities Litigation Reform Act of 1995. These include statements=
concerning plans, objectives, goals, strategies, future events or performan=
ce
and all other statements which are oth

Potential synergistic effect of Copaxone® and minocycline to be studied in =
relapsing-remitting multiple sclerosis
New study in Canada evaluating the potential add-on effect
http://www.newswire.ca/en/releases/archive/May2004/31/c9014.html
May 31, 2004
Source: Teva Pharmaceutical Industries Ltd.
CNW Telbec
A new study assessing the add-on effect of minocycline in relapsing-remitti=
ng
multiple sclerosis (RRMS) patients with active disease who are treated with=
Copaxone® (glatiramer acetate injection) has just been initiated at four ma=
jor
investigation sites in Canada: Calgary, Vancouver, Edmonton and Montreal.
"The primary efficacy objective of this study is to evaluate the add-on
treatment effect of oral minocycline in subjects treated with a daily injec=
tion of
glatiramer acetate as measured by various MRI parameters," said Dr. Luanne =
Metz, professor at the Department of Clinical Neuroscience of the Universit=
y
of Calgary, and principal investigator. "Other study objectives include the=
assessment of tolerability and safety of this combination."
Approximately 50 patients will be evaluated in the four designated study
centers for a total duration of nine months. This study is a double blind, =
randomized study designed to compare the combination of glatiramer acetate =
plus oral minocycline to glatiramer acetate plus placebo.
"This particular study is exciting because it provides us with the perfect =
opportunity to determine if there are synergies between minocycline and
glatiramer acetate that would provide even greater control in managing MS,"=
added Dr. Metz.
Minocycline, an antibiotic, eliminates bacteria that cause pneumonia, acne,=
and infections of skin, genital and urinary systems, and the central nervou=
s
system.
Copaxone® is indicated for the reduction of the frequency of relapses in
relapsing-remitting MS. In controlled clinical trials, the most commonly
observed adverse events associated with the use of Copaxone® which
occurred at a higher frequency than in placebo treated patients were:
injection site reactions, vasodilation, chest pain, asthenia, infection, pa=
in,
nausea, arthralgia, anxiety and hypertonia.
Copaxone® is now approved in 42 countries worldwide, including Canada,
the U.S., Australia, Israel, and all the European countries. In Europe,
Copaxone® is marketed by Teva Pharmaceutical Industries Ltd., and Aventis
Pharma. In North America, Copaxone® is marketed by Teva Neuroscience.
Teva Pharmaceutical Industries Ltd., headquartered in Israel, is among the =
top 25 pharmaceutical companies in the world. The company develops,
manufactures, and markets generic and branded human pharmaceuticals
and active pharmaceutical ingredients. Close to 90 percent of Teva's sales =
are in North America and Europe. Teva's innovative R&D focuses on
developing novel drugs for diseases of the central nervous system.
Copaxone® is a registered trademark of Teva Pharmaceutical Industries Ltd. =

This release contains forward-looking statements, which express the current=
beliefs and expectations of management. Such statements are based on
current expectations and involve a number of known and unknown risks and
uncertainties that could cause Teva's future results, performance or
achievements to differ significantly from the results, performance or
achievements expressed or implied by such forward-looking statements.
Important factors that could cause or contribute to such differences includ=
e
Teva's ability to successfully develop and commercialize additional
pharmaceutical products, the introduction of competitive generic products, =
the
impact of competition from brand-name companies that sell their own generic=
products or successfully extend the exclusivity period of their branded
products, Teva's ability to rapidly integrate the operations of acquired
businesses, including its recent acquisition of Sicor Inc., the availabilit=
y of
product liability coverage in the current insurance market, the impact of
pharmaceutical industry regulation and pending legislation that could affec=
t
the pharmaceutical industry, the difficulty of predicting U.S. Food and Dru=
g
Administration and other regulatory authority approvals, the regulatory
environment and changes in the health policies and structure of various
countries, acceptance and demand for new pharmaceutical products and new
therapies, uncertainties regarding market acceptance of innovative products=
newly launched, currently being sold or in development, the impact of
restructuring of clients, reliance on strategic alliances, exposure to prod=
uct
liability claims, dependence on patent and other protections for innovative=
products, fluctuations in currency, exchange and interest rates, operating =
results and other factors that are discussed in Teva's Annual Report on For=
m
20-F and its other filings with the U.S. Securities and Exchange Commission=
.
Forward-looking statements speak only as of the date on which they are
made, and the Company undertakes no obligation to update publicly or revise=
any forward-looking statement, whether as a result of new information, futu=
re
developments or otherwise.

Copyright © 2004, Canada NewsWire Ltd.

My name is Minde' Dreyer. I live in Phoenix, Arizona. My birthday is
3/9/72.
I just found out I have RR MS in Nov, 2003. I am in a
Novantrone/Copaxone
Study here at Barrow Neurological Institute. I am married and have 3
kids. I
finished the Novantrone in March, and take Copaxone now. My first MRI
is the
22nd of this month. My last and only MRI showed 2 brain lesions and 2
cervical spine lesions. I had severe numbness, which is gone now, just
the
L'he